Published: Fri, July 28, 2017
Medical | By Garry George

Parents drop request to bring terminally ill British baby home

Parents drop request to bring terminally ill British baby home

However, Great Ormond Street Hospital (GOSH) bosses said Charlie should stay at a hospice for a shorter period and expressed doubt over the proposed care arrangements.

Meanwhile, Katie Gollop QC, who is acting for Great Ormond Street hospital, said the hospital had searched "the length and breadth of the country" for an appropriate medical team who could care for Charlie.

Mr Justice Francis has been hearing their arguments in the High Court and has yet to rule.

A High Court judge gave the involved parties until 12pm on Thursday (27 July) to come up with an agreement for Charlie's end-of-life care, which has now passed, though it was unclear whether any compromise had been reached. They said they'd been told the time during which treatment could have helped their son had passed - while the hospital court battle was going on.

GOSH said the front door of the home in Bedfont, London, was too small for the ventilator to fit through, and suggested a hospice.

Charlie requires invasive ventilation to breathe and can not see, hear or swallow.

"These are issues which cry out for settlement", Judge Nicholas Francis said.

The details of when the transfer and removal of life support take place were discussed while journalists were removed from the court but earlier, Fiona Paterson, representing the hospital, said in open court that "it should be Friday".

The hospital said that experimental therapy "could have been an opportunity for Charlie and it will be an opportunity for all the patients with the same or a similar rare disease".

They say a hospice would be a better plan.

Monday, after months of proceedings, the parents of Charlie Gard had made a decision to renounce their court battle to preserve the lives of their children.

The couple had fought all the way to the European Court of Human Rights for permission to have their son treated, but were refused by judges at each step.

Mr Armstrong said they also have nurses who are willing to care for Charlie - some of whom are from GOSH - and that a company has offered to provide a ventilator. "We can not know if Charlie would have responded to the experimental therapy".

"As I disclosed in court on July 13, I have relinquished and have no financial interest in the treatment being developed for Charlie's condition", he continued. They said they accept that his condition has deteriorated to the point where the experimental treatment would not work. "Unfortunately, a MRI scan of Charlie's muscle tissue conducted in the past week has revealed that it is very unlikely that he would benefit from this treatment".

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